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Thankful for compassionate response

by Kat McCormick
| June 7, 2024 12:00 AM

I am the mother of a young man with Prader Willi Syndrome who received inpatient treatment at the Montana State Hospital. Individuals with this rare disorder believe they are in a constant state of starvation, and will literally eat themselves to death if food is not locked away. They are compassionate and friendly, but often also cognitively challenged and can be aggressive.. 

Over the years, my son spent time in local hospitals, and we’ve had to call law enforcement for help. These experiences left my entire family devastated, heartbroken, and desperate for help. 

Someone ultimately encouraged me to contact Gov. Greg Gianforte’s office, and within a very short time, his constituent liaison returned my call and put me in touch with the right people. I began working with a local provider, the Department of Public Health, and Human Services (DPHHS), and my son was ultimately admitted to MSH. 

The state hospital staff went above and beyond to support my son. They obtained specialized training to become educated about Prader Willi Syndrome. They regularly communicated with me; they were patient, understanding and willing to take my calls and answer my questions.  

They saved my son’s life — and maybe even mine. 

Because of these partnerships, my son is now receiving community services in an incredible group home that specializes in Prader Willi Syndrome. He is going out into the community, making friends, and has goals for his life. He is a contributing part of the community in which he lives — an achievement everyone deserves, regardless of the challenges they face. 

I know everyone’s story is different, but I am so thankful for the dedication and compassion my son received from the Gianforte administration, Montana State Hospital and DPHHS. It is clear they care, and his life is good. We know that nothing is guaranteed, but determination and hope paid off, at least for now, and honestly — that’s enough. 

Kat McCormick lives in Butte.